Families for the Treatment of Hereditary Motor Neuron Disease

Talks from a dedicated day for those affected by hereditary forms of motor neuron disease

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Displaying 1 - 5 of 5 episodes

Episode	Description	People	Date
The Future of Treating Genetic MND	Professor Kevin Talbot, University of Oxford, gives the fifth and final talk in the day's event, looking at the future of genetic MND and what the future holds for it.	Kevin Talbot	17 April, 2019
Early Genetic Trials in MND: The Sheffield SOD1 Experience	Professor Christopher McDermott, University of Sheffield, gives the fourth talk in the day's event, and, along with Dani Baird, a person living with MND and a participant in the SOD1 trial, discuss her experieces in the trial.	Christopher McDermott, Dani	17 April, 2019
The Value of Online Shared Experiences	Professor Louise Locock and Jade Howard, Univesity of Aberdeen, give the third talk in the day's event, looking at patient's experiences of motor neuron disease and how patients and families share their experiences online	Louise Locock, Jade Howard	17 April, 2019
Getting Tested: Experience from the Genetic Clinic	Professor Anneke Lucassen, University of Southampton, gives the second talk fo the day, looking at her research and experience from studying the genetics related to MND	Anneke Lucassen	17 April, 2019
What are the Issues in Familial MND?	Professor Martin Turner, University of Oxford, gives an introduction to the conference, and outlines some of the research his group has been doing on understanding familial MND and how they can treat it.	Martin Turner	17 April, 2019